Brain Tumors: Practical Guide to Diagnosis and Treatment

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Welcome Video. Personalized Medicine: Video. Neurosurgery Video. Brain Tumor Primer: Video. Symptoms Management Video.

Being a carer

Keynote Address: Video. Maximizing Cognitive Function: Video. Surgery and Reoperation Options: Video. Novel Radiation Therapy: Video. For people new to brain tumors, start at the Introductory section below! John Yu Cedars-Sinai and Dr.


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  5. March 21, Introduction and Welcome Remarks. If you aren't able to talk to them, you might want to talk to friends or family about how you're feeling. Your GP or healthcare team are other potential sources of support or you could contact our support team. It doesn't necessarily matter who you talk to, what's important is not bottling up your emotions.

    Practical Guide to Diagnosis and Treatment, 1st Edition

    If you need someone to talk to or advice on where to get help, our Support and Information team is available by phone, email or live-chat. It's important that you do not sacrifice your own health while caring for someone. Make sure you eat well and stay hydrated. This can help prevent you from becoming ill and give you more energy to provide care.

    Ebook Brain Tumors: Practical Guide To Diagnosis And Treatment

    Lack of sleep can affect your concentration and ability to make decisions. It can also make you feel depressed and increase your risk of some health conditions. If you're sleeping less than you normally do, make sure you talk to your GP for advice or medication. If you're going to be helping someone move around, make sure you understand how to manage this without injuring yourself. Ask your GP about the many aids and adaptations that are available, for example hoists and rails, and ensure sure you are trained in using them correctly. If you are feeling that everyday activities are a struggle, you have little motivation or are unable to feel enjoyment in things you used to, this could be depression.

    If you think you might be depressed, there are a variety of sources of support available to you and you should talk to your GP as soon as possible. If your loved one has memory difficulties , this can sometimes cause problems relating to safety - for example, you may tell them not to touch the cooker, but they may forget that you told them that. Please watch our live panel discussion on caring, which includes topics such as power of attorney, help as a carer and living wills. Some tumours can cause personality changes , affecting their ability to control their behaviour and emotions.

    Sometimes this can lead to aggressive behaviour. However, your safety should be paramount and you should try not to feel guilty if you need professional help to manage the aggression. Talk to your healthcare team if you have concerns about a loved one becoming violent and they will help you learn to read the trigger signs, manage the aggression more safely and signpost additional support that may be available.

    Your caring role can stop for various reasons - it could be because your loved one has recovered and no longer needs care, or it could be because they can no longer be cared for at home, or because they have died. If you are grieving, you will have all the emotions this brings, plus the practical matters that need to be dealt with.

    Your GP is also an important source of support, particularly if your grief seems overwhelming.

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    They can also put you in touch with a bereavement counsellor, if necessary. Our Brain Tumour Information Pack is designed to help you feel more confident when discussing treatment and care with your medical team. If you have further questions, need to clarify any of the information on this page, or want to find out more about research and clinical trials, please contact our team:. Clinical trials and research information. Get involved in research. You can also join our active online community on Facebook - find out more about our groups. Teresa's husband, Rob, has a brain tumour and in this video she discusses the practical and emotional sides of caring and the importance of retaining your own identity.

    Being a carer You may not consider yourself to be a 'carer'. What can carers do to look after themselves? Join our carers community online Our closed Facebook group for carers are a great place to connect with other people affected by a brain tumour and share your experiences. Join our Facebook group for carers. People you could talk to. Family and friends Once they know, they can provide support, emotionally and practically.

    Your employer They may be flexible around working hours and leave arrangements. Make a list of useful numbers Making a list of useful numbers to contact, especially for out of hours, can make you feel more reassured that you know what to do should anything happen that causes you concern. Take steps to retain or build yourself a support network Let people know if you need help and what you need, no matter how small.

    Book an appointment. This can be for many reasons, including: Feeling that your life is no longer your own Not wanting your whole life to be about the illness Feeling like you aren't appreciated for the care you provide Having to give up employment or education opportunities Losing your support networks and giving up social activities. Get support If you need someone to talk to or advice on where to get help, our Support and Information team is available by phone, email or live-chat.

    Support and Info Line.



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